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15 June 2007

Asperger’s will either ruin or save my family.

Sadly this post would give away my identity to any family members, but I feel like I need to talk about it. The chances that they would arrive here are slim, so it’s worth it.

My parents are getting divorced. Between my dad’s lies (which I won’t go into, because I don’t know the specifics and I don’t think they’re directly related to his aspiety), my mom’s misunderstandings, and the total lack of communication between them for over twenty years, they’ve had enough. But it’s the third time it’s almost happened. I’m older this time, so I know a lot more of what’s going on (I figure out more, and they also tell me more).

And it’s a little different this time in that now mine and my dad’s Asperger’s is open to the family. I’ve known it for a long time, but he hasn’t. It was only when he read a book that my mom gave him that he was exposed to the working of his brain. She thought he might be offended when she mentioned it, but I knew better. I hadn’t talked about it much to either of them, so when she told me that, I didn’t really say what I thought. I was still being very private about it.

Yesterday my dad took my brother and I to Tastee Freez (yes, that was my brother’s choice. I know…) to talk about the whole situation. He was pretty surprised at my knowledge of what was going on (it really wasn’t that hard to grasp the jist of the arguments, even from the muffled version I can hear from my room) and my understanding of the reasons for everything. He didn’t know that I’d had a similar experience to his when he read the book. He didn’t know that I had such strong opinions about it. He probably expected to give his children a brief explanation of the unfolding events.

If I interpreted my brother’s reactions correctly, that’s exactly what he saw it as. I think he saw it as obvious information that our ignorant father was giving us, and my apparent interest in contributing was merely on account of my own ignorance. Because I’m younger. Of course, I could just be reading way too much into his tone, something which I’m bad at in the first place. But the point is that my dad and I connected on a level that we never had before. It’s interesting that before we knew about our similar conditions, we subconsciously assumed that the other just wouldn’t understand. But once we knew, the understanding, the openness of the speaking… it was incredible. Our whole impression of eachother changed in those few minutes.

I have a plan to bring my parents back together by helping them understand eachother’s brains and intentions better. I’m being a bridge between them, a role that all children have the ability to take. We are in a position where we see the whole stage and characters’ arguments, wishes, and misunderstandings. It is unbiased (in most cases. I suppose if you had an abusive parent, you wouldn’t feel that way), and the parents’ points are very transparent due to genetics. While there is much, especially in the case of marriage, that experience is needed to resolve, a whole lot of it requires simply intuition and the ability to look at the situation without skewed judgement. Children are perfect for this. Sadly for this ability to be noticed and to take effect, the child needs to take the initiative, and the parents need to be willing to hear what he/she may have to say. Luckily I am old enough and have an intimate connection with the things my dad is going through to be taken seriously.

When I talked to my mom today, I purposely brought up the subject of Asperger’s. I waited for the right time, then eased into it. I am apparently by far the expert between the three of us on all aspects of it. She took in what I was saying, occasionally unnerved by my strong opinions. She has a lot of misconceptions about autism in general, most notably shown when she said “…oh, those poor people. [etc] rocking back and forth and…” in response to the mention of severe cases. I think I made good progress, and I will keep attempting to show both of them their true feelings for one another.

The reason I have taken on this task of saving my family is not to keep my parent’s together. My brother is off to college at the end of the summer, and our existence as a nuclear family is pretty much over no matter what. Sure, I’d like them to be happy—they’re my parents. But if all that happened was a divorce, I wouldn’t really care. Since they’ve contemplated it more than once before, it’s not a shock. The real issue for me is that the combination of my brother leaving and my dad (or mom, if you look at it that way) leaving would make our moderately large suburban house unmanagable.

Selling the house. That is the true reason I want to keep my parents together. My mom lived in a bunch of houses as a kid, so I don’t think she gets it as well as my dad. The house is full of my memories. Even the cracks in the walls are of extraordinary value to me; the crayon still on the walls, the strangely hypnotic wallpaper in the bathroom, everything. When the house goes, the family is officially over. I keep acting like this is a selfish way to think, but I know it’s not. That house itself has as much meaning to me as the people in it. The contentment that we own it, that is it ours, is something I’ve never had to part with, and I imagine it wouldn’t be easy.

But alas, they are sparring quite loudly at this very moment, and it seems as if my endeavors to crack the barriers between them (and myself) may end without considerable impact.

Filed by yone at June 15th, 2007 under In My Humble Aspie Opinion, Personal Experience
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13 June 2007

The ‘Cure’

What if I told you that there was an organization currently researching a mind-altering drug that would not only change your personality but distort your thought processes, preventing connections that would otherwise be made? Not too uncommon, right? Now imagine that this drug would be administered forcefully to children by their own parents.

This is exactly what Cure Autism Now is striving for. They want that wonder drug, and they want the ability to detect autism before birth.

The misunderstanding and discommunication goes both ways, so why aren’t -they- the ones in need of curing? Because there’s power in numbers. A potent mixture of groupthink and might equals right never fails to win. If a group of aspies decided to fight back with the opposite of such a drug, we’d probably be arrested for terrorism or developing biological weapons, for god’s sake.

They claim to be searching for a cure, but they’ve crossed a fine line. If they can show me a large group of volunteer testers that totally understand the ramifications that this may have, then go right ahead. But that group cannot include children, and they must all have enough communication abilities to consent. I believe I speak for all autists and aspies when I say that we do not want to be cured. If I talked to those (hypothetical, mind you) volunteers, I am positive that every single one of them would have their own misconceptions of what their condition was. They would not know that such a cure would not only make it easier to function in NT society, but it would destroy their mind.

The autistic mind is no more or less beautiful than the neurotypical one. No one is quite positive on what causes autism, and I’m fine with these groups looking for a reason. What I’m not fine with is treating it as a disease. Not every human being needs the ability to stop thinking about the illogicality of the world and just go along with it. We are not “trapped in our own little world”; we are freed from your worse one. So stop trying to yank us back.

Filed by yone at June 13th, 2007 under (Not) Curing Autism, In My Humble Aspie Opinion
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I never knew what the word ‘happy’ meant.

I’ve known about my Asperger’s for at least a couple months now, and just recently I became obsessive about it. I wanted to know everything I possibly could about it; I wanted to know about my brain. I came across a site called ‘The Mind Within’. The author hasn’t updated the site in seven years so the web design is crap, but I still was loving the things he was saying. No one has ever understood me, even my own family, but this unknown guy knew how my mind works. I read on. Then I arrived at this paragraph:

Several aspies were not diagnosed until adulthood. When they discovered that they had AS (many of them diagnosed themselves), they describe the main feeling as that of relief. This contrasts sharply to neurotypicals who get a diagnosis for any condition – they often break down. When aspies (esp. adults) discover about their condition, they often respond by searching for more information, seeking to know more instead of denying the existence of this condition.

In my rushed reading, I read right through it without thinking about it. But then it hit me later down the page. I scrolled back up and reread it.

relief.

I burst into tears. I was relieved. I was so insanely relieved. And better yet, I was happy. I realized what happy meant. It’s not just a synonym for an apathetic hybrid of pleasure and satisfaction as I used to assume. Happiness requires a certain stimulation and belonging that I had never gotten from our neurotypical world. And, go figure, I got it from a fellow aspie.

I don’t have trouble processing emotions. I don’t have trouble expressing them. I have all of the same emotions, but I need different stimulation. And I express them differently. If the percentages of autistic and NT were reversed if also the role of ‘disorder’ would be reversed. It is not better or worse to be autistic, I discovered. But it is merely a type of mind and personality.

That first feeling of crying with joy was the best moment of my life thus far. I know that I will remember it forever as the day that I was freed from the abuse, confusion, and stress of living in a neurotypical society. Yes, I will still be forced to live in said society. But I will be able to cope better knowing that if those stresses and confusions are ever overwhelming, there will be a sense of solace in knowing that there are people who understand my troubles and there is a group in life that I belong to.

Filed by yone at June 13th, 2007 under Personal Experience
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